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20/01/2011 PUBLIC NOTICE OF MEETING
"ASSOCIATION OF FRIENDS OF MYASTHENIA OF MOROCCO"
FOR PUBLIC INFORMATION MEETING OF THE ENLARGED BUREAU
Friday, January 28, 2011 THE HEADQUARTERS OF A 19 HOUR YYMM
Meeting scheduled for development between the Office and its collaborators YYMM medical
- Restart neurology conferences to develop the vigilance of practitioners on such rare diseases as part of the information and continuing medical education. Note for example that the myasthenic, misunderstood, is particularly sensitive to a whole list of common drugs, which worsen their balance and can trigger crises in his suffocation.
- In time we reported the serious shortages in vital medicines. We warned the Department of Health, among others concerned about the dramatic potential of these unexpected failures, so they can take responsibility. Which are part of sovereignty. We have called for measures to protect the holders of orphan diseases. Articles on the Net and in print have been distributed. Our thanks go to the press and the media who have information.
- In addition, we continue to seek the highest court of the state, the abolition of indirect taxes of customs and VAT on care and medicines for all illnesses, without distinction between diseases and defects . Which taxes affect only sick!
- We will evaluate all the work and analyze how to develop the Regional Reference Center, which was created as part of YYMM to the proximity of users. A breakthrough in the spontaneous regionalization.
THIS MEETING WILL BEGIN TO PATIENTS AND THE PARENTS OF PATIENTS OF ANY MOROCCO, INTERESTED IN VOLUNTEER WORK FOR HOLDERS OF DISABLED rare diseases, including myasthenia gravis and MULTIPLE SCLEROSIS. WE NEED TO MAKE A REPORT TO YOU. THE MATERIAL IS BASED ON END OF NEUROLOGICAL READY, EEG, EMG, ECG ECHO AND, HERE ARE THE ISSUES BROUGHT ON THE AGENDA OF JANUARY 28, 2011:Our Association is a national mission has its headquarters in Kenitra. Open to all neuromuscular patients from Morocco, and without borders, it is finalizing its Kenitra Regional Reference Center Neuromuscular Diseases for proximity reasons.
- Continuing to equip the Center in question, we must: Prepare one or two technicians to achieve the EEG, EMG. Launch a program of activities and health education to the public. Organize visits and / or local consultations neurologists. Mount an operation "open door" with our neurologists. - Restart neurology conferences to develop the vigilance of practitioners on such rare diseases as part of the information and continuing medical education. Note for example that the myasthenic, misunderstood, is particularly sensitive to a whole list of common drugs, which worsen their balance and can trigger crises in his suffocation.
- In time we reported the serious shortages in vital medicines. We warned the Department of Health, among others concerned about the dramatic potential of these unexpected failures, so they can take responsibility. Which are part of sovereignty. We have called for measures to protect the holders of orphan diseases. Articles on the Net and in print have been distributed. Our thanks go to the press and the media who have information.
- In addition, we continue to seek the highest court of the state, the abolition of indirect taxes of customs and VAT on care and medicines for all illnesses, without distinction between diseases and defects . Which taxes affect only sick!
- We will evaluate all the work and analyze how to develop the Regional Reference Center, which was created as part of YYMM to the proximity of users. A breakthrough in the spontaneous regionalization.
- We will continue our request the local Municipality, the Province and the Region, by renewing our previous requests. To overcome any defect, we are looking for sponsors institutional and individual donors can fund a local center town of Kenitra, to house apart this "Regional Reference Centre of Neuromuscular Diseases" to respond to the proximity to the benefit and Zone Gharb, Chrarda, Bni Hssen. NOTE THAT ALL OUR LAST ACTS OF SOLIDARITY IS FREE.
The YYMM CONTACT TO BOOK YOUR PLACE AT THE SECRETARIAT OF MY DR IDRISSI AHMED.
THE MEETING WILL BE HELD AT THE REGISTERED OFFICE AT 112 AVENUE MED DIOURI, Kenitra, A 19.00, JANUARY 28, 2011, TEL-FAX: 0537376330, SUPPORT: 066125202.
aamm25@gmail.com
http://myasthenie.forumactif.com AND WELCOME YOU! IDRISSI MY DR AHMED
The YYMM CONTACT TO BOOK YOUR PLACE AT THE SECRETARIAT OF MY DR IDRISSI AHMED.
THE MEETING WILL BE HELD AT THE REGISTERED OFFICE AT 112 AVENUE MED DIOURI, Kenitra, A 19.00, JANUARY 28, 2011, TEL-FAX: 0537376330, SUPPORT: 066125202.
aamm25@gmail.com
http://myasthenie.forumactif.com AND WELCOME YOU! IDRISSI MY DR AHMED
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